Scientific research often requires access to personal information to unlock insights that will improve our world. For those insights to be trusted, however, any personal information must be processed in a lawful and ethical manner that respects privacy and security considerations.
FPF engages stakeholders across academia and industry to produce best practices and ethical review structures that promote responsible research. We elevate and honor responsible research collaborations through our events and awards, including the FPF Award for Research Data Stewardship. Our work is centered around streamlining, encouraging, and promoting responsible scientific research that respects essential privacy and ethical considerations throughout the process. FPF’s Ethical Data Use Committee (EDUC), for example, is an independent ethical review panel that reviews and evaluates the risks and benefits of organizations’ data-sharing projects with academic researchers. FPF works with policymakers to develop legislative protections that support effective, responsible research with strong privacy safeguards, including hosting events that allow policymakers and regulators to engage directly with practitioners from academia, advocacy, and industry.
FPF has an Ethics and Data in Research Working Group. This group receives late-breaking analysis of emerging US legislation affecting research and data, meets to discuss the ethical and technological challenges of conducting research, and collaborates to create best practices to protect privacy, decrease risk, and increase data sharing for research, partnerships, and infrastructure. Learn more and join here.
Navigating Cross-Border Data Transfers in the Asia-Pacific region (APAC): Analyzing Legal Developments from 2021 to 2023
Today, the Future of Privacy Forum (FPF) published an Issue Brief comparatively analyzing cross-border data transfer provisions in new data protection laws in the Asia-Pacific. Titled Navigating Cross-Border Data Transfers in the Asia-Pacific region (APAC): Analyzing Legal Developments from 2021 to 2023, the Issue Brief outlines key developments in cross-border data transfers in the Asia-Pacific […]
In recent years, there has been an uptick in new (comprehensive) data protection laws in the Asia Pacific (APAC). This trend introduces challenges for cross-border compliance, particularly for the industry, legal practitioners, and the community of data protection regulators. As a result of the difficulties, these stakeholders acknowledge that there is a need for greater […]
Today, the Future of Privacy Forum (FPF) and Asian Business Law Institute (ABLI) – as part of their ongoing joint research project: “From Consent-Centric Data Protection Frameworks to Responsible Data Practices and Privacy Accountability in Asia Pacific” – are publishing a second report in their series of detailed jurisdiction reports on the status of “consent” […]
Our colleagues at the Israel Tech Policy Institute (ITPI) published a thoughtful blog on the significance of diversity and inclusion in clinical trials and health and medical research databases. They discuss the imperative of being represented in data, for one’s existence to be recognized and considered. When such data is the building block for a […]
On November 16, 2021, the Future of Privacy Forum (FPF) and the Brussels Privacy Hub of Vrije Universiteit Brussel (VUB) hosted the Brussels Privacy Symposium 2021 – The Age of AI Regulation: Global Strategic Directions. The event, convened by Jules Polonetsky, CEO of FPF, Christopher Kuner and Gianclaudio Malgieri, Co-Chairs of the Brussels Privacy Hub […]
On February 21, 2022, FPF published a report detailing China’s data governance framework for data localization and cross-border transfers. The report outlines 10 steps organizations can take before deciding to localize or transfer data, with practical advice on how to carry out each of them. By examining provisions of relevant laws and administrative regulations passed […]
The 2020 Brussels Privacy Symposium is the fourth-annual academic program jointly presented by the Brussels Privacy Hub of Vrije Universiteit Brussel (VUB) and the Future of Privacy Forum (FPF) and is a global convening of practical, applicable, substantive privacy research and scholarship. On December 2, 2020, the fourth iteration of the Brussels Privacy Symposium, “Research and the Protection of […]
Does your company have data that could help academic researchers unravel the mysteries of human health, behavior, education, or other areas of study? Data held by private organizations has the potential to lead to scientific insights that can benefit society and improve lives – if it can be accessed in a responsible manner that respects […]
The European Commission Considers Amending the General Data Protection Regulation to Make Digital Age of Consent Consistent
The European Commission published a Communication on its mandated two-year evaluation of the General Data Protection Regulation (GDPR) on June 24, 2020 in which it discusses as a future policy development “the possible harmonisation of the age of children consent in relation to information society services.” Notably, harmonizing the age of consent for children across […]
New FPF Study: More Than 250 European Companies are Participating in Key EU-US Data Transfer Mechanism
Co-Authored by: Drew Medway & Jeremy Greenberg European Companies’ Participation in Privacy Shield Up Nearly 30% from the Past Year. EU-US Privacy Shield Remains Essential to Leading European Companies. From Major Employers such as Logitech and Siemens to Leading Technology Firms like Telefónica and SAP, European Companies Depend on the EU-US Agreement. The Privacy Shield […]