Research often requires using sensitive data to answer important questions. The ethical collection and analysis of personal information can be challenging to do while still protecting the privacy of the implicated individuals, honoring informed consent, and complying with other legal obligations. The technology, policies, and ethical considerations for researchers are constantly shifting, sometimes making it difficult to keep up. That’s why FPF engages stakeholders across academia and industry to produce recommendations, best practices, and ethical review structures that promote responsible research. Our work is centered around streamlining, encouraging, and promoting responsible research that respects essential privacy and ethical considerations throughout the research lifecycle. FPF works with policymakers to develop legislative protections that support effective, responsible research with strong privacy safeguards, including hosting events that allow policymakers and regulators to engage directly with practitioners from academia, advocacy, and industry.
Event Recap: Dublin Privacy Symposium 2021, Designing for Trust: Enhancing Transparency & Preventing User Manipulation
Key Takeaways The biggest challenge to increase UX transparency may be encouraging people to make deliberate decisions from a UX design perspective. Even designers’ color and shape choices in UI can be subtle ‘dark patterns’ that might even prevent, e.g., color-blind users from understanding the options at hand. Organizations should ask themselves whether they should […]
Stanford Medicine & Empatica, Google and Its Academic Partners Receive FPF Award for Research Data Stewardship
The second-annual FPF Award for Research Data Stewardship honors two teams of researchers and corporate partners for their commitment to privacy and ethical uses of data in their efforts to research aspects of the COVID-19 pandemic. One team is a collaboration between Stanford Medicine researchers led by Tejaswini Mishra, PhD, Professor Michael Snyder, PhD, and […]
FPF Issues Award for Research Data Stewardship to Stanford Medicine & Empatica, Google & Its Academic Partners
WASHINGTON, DC (June 29, 2021) – The second-annual FPF Award for Research Data Stewardship honors two teams of researchers and corporate partners for their commitment to privacy and ethical uses of data in their efforts to research aspects of the COVID-19 pandemic. One team is a collaboration between Stanford Medicine researchers led by Tejaswini Mishra, PhD, Professor […]
Research from Stanford Medicine and Empatica, Inc: Early Detection of COVID-19 Using Empatica Smartwatch Data
Tejaswini Mishra, PhD, Michael Snyder, PhD, Erika Mahealani Hunting, Alessandra Celli, Arshdeep Chauhan, and Jessi Wanyi Li from the Stanford University School of Medicine’s Department of Genetics, and Empatica Inc. are the recipients of the second-annual FPF Award for Research Data Stewardship. The collaboration between the research team from Stanford Medicine and Empatica, a medical […]
Google: COVID-19 Community Mobility Reports
Google has been recognized with the second-annual FPF Award for Research Data Stewardship for its work to produce, aggregate, anonymize, and share data on community movement during the COVID-19 pandemic. Google’s Community Mobility Reports go through a robust anonymization process that employs differential privacy techniques to ensure that personal data, including an individual’s location, movement, […]
FPF Partners with Penn State and University of Michigan Researchers on Searchable Database of Privacy-Related Documents
FPF is collaborating with a team of researchers to build a searchable database of privacy policies and other privacy-related documents. The PrivaSeer project, led by researchers from Penn State and the University of Michigan, has received a $1.2 million grant from the National Science Foundation (NSF) to ease the process of collecting and utilizing privacy […]
ITPI Event Recap – The EU Data Strategy and the Draft Data Governance Act
On May 19, 2021, the Israel Tech Policy Institute (ITPI), an Affiliate of The Future of Privacy Forum (FPF), hosted, together with the Tel Aviv University, The Stewart & Judy Colton Law and Innovation Program, an online event on the European Union’s (EU) Data Strategy and the Draft Data Governance Act (DGA). The draft DGA […]
Colorado Privacy Act Passes Legislature: Growing Inconsistencies Ramp Up Pressure for Federal Privacy Law
Today, the Colorado Senate approved the House version of the Colorado Privacy Act (SB21-190) that passed yesterday, on June 7. If approved by Governor Jared Polis, Colorado will follow Virginia and California as the third U.S. state to establish baseline legal protections for consumer privacy. “Although the Colorado Privacy Act contains notable advances that build […]
FPF Ethical Data Use Committee will Support Research Relying on Private Sector Data
FPF has launched an independent ethical review committee to provide oversight for research projects that rely upon sharing of corporate data with researchers. Whether researchers are studying the impact of platforms on society, supporting evidence based policymaking, or understanding issues from COVID to climate change, personal data held by companies is increasingly essential to advancing scientific knowledge.
5 Highlights from FPF’s “AI Out Loud” Expert Panel
On Wed., April 14th, FPF hosted an expert panel discussion on “AI Out Loud: Representation in Data for Voice-Activated Devices, Assistants.” FPF’s Senior Counsel and Director of AI and Ethics, Brenda Leong, moderated the panel featuring Anne Toth, the Director of Alexa Trust, Amazon; Irina Raicu, Internet Ethics Program Director, Markkula Center for Applied Ethics, […]