Understanding Blockchain: A Review of FPF’s Oct. 29th Digital Data Flows Masterclass
Authors: Hunter Dorwart, Stacey Gray, Brenda Leong, Jake van der Laan, Matthias Artzt, and Rob van Eijk On 29 October 2020, Vrije Universiteit Brussel (VUB and Future of Privacy Forum (FPF) hosted the eight Digital Data Flows Masterclass. The masterclass on blockchain technology completes the VUB-FPF Digital Data Flows Masterclass series. The most recent masterclass explored […]
21st Century Cures Act Final Rule: Key Health Data Privacy Considerations
On the eve of a key compliance date, the HHS Office of the National Coordinator for Health Information Technology (ONC) extended deadlines for entities working in health information technology to comply with a new federal rule intended to “promote health care choice and competition across the United States” and “advance interoperability and support the access, exchange, and […]
FPF Best Practices and Contract Guidelines Help Companies Share Data with Academic Researchers
Does your company have data that could help academic researchers unravel the mysteries of human health, behavior, education, or other areas of study? Data held by private organizations has the potential to lead to scientific insights that can benefit society and improve lives – if it can be accessed in a responsible manner that respects […]
FPF Submits Feedback and Comments on UNICEF’s Draft Policy Guidance on AI for Children
Last week, FPF submitted feedback and comments to the United Nations Children’s Fund (UNICEF) on the Draft Policy Guidance on Artificial Intelligence (AI) for Children, which seeks “to promote children’s rights in government and private sector AI policies and practices, and to raise awareness of how AI systems can uphold or undermine children’s rights.” The […]
Chelsey Colbert Discusses Trends in Mobility & Location Data
Chelsey Colbert, Policy Counsel, leads FPF’s mobility and location data portfolio. Prior to joining FPF, Chelsey was a lawyer at an international business law firm in Canada and was seconded as in-house privacy and data governance counsel to Sidewalk Labs, an Alphabet company that designs and builds urban innovations. Chelsey holds a J.D. with a […]
FPF & Dataskydd.net Webinar – Privacy in High Density Crowd Contexts
Authors: Hunter Dorwart and Rob van Eijk On 30 September 2020, Future of Privacy Forum (FPF) and Dataskydd.net jointly organized the webinar ‘Privacy in High Density Crowd Contexts’. A key aspect of the webinar was the role of industry-driven privacy standards in the development and deployment of privacy-friendly technologies for crowd management, mobile connectivity, and […]
FPF Presents @ RightsCon 2020: “Frontiers in health data privacy: navigating blurred expectations across the patient-consumer spectrum”
The patient-consumer spectrum is a growing concept in which healthcare is rapidly transitioning from a periodic activity in fixed, traditional health care settings to an around-the-clock activity that involves the generation, use, and integration of data reflecting many aspects of individuals’ lives and behaviors. Accompanying this spectrum are blurred distinctions between traditional versus consumer-generated health […]
California’s SB 980 Would Codify Strong Protections for Genetic Data
Author: John Verdi (Vice President of Policy) This week, SB 980 (the “Genetic Information Privacy Act”) passed the California State Assembly and State Senate, with near unanimous support (54-10 and 39-0). If signed by the Governor before the Sept. 30 deadline, the law would become the first comprehensive genetic privacy law in the United States, […]
How the Student Privacy Pledge Bolsters Legal Requirements and Supports Better Privacy in Education
The Student Privacy Pledge is a public and legally enforceable statement by edtech companies to safeguard student privacy, built around a dozen privacy commitments regarding the collection, maintenance, use, and sharing of student personal information. Since it was introduced in 2014 by the Future of Privacy Forum (FPF) and the Software and Information Industry Association, […]
FPF Presents Expert Analysis to Washington State Lawmakers as Multiple States Weigh COVID-19 Privacy and Contact Tracing Legislation
In response to the ongoing public health emergency, over the past few months state legislatures in the United States have diverted their resources towards establishing state and local reopening plans, allocating federal aid, and promoting public trust and public participation by addressing concerns over privacy and civil liberties. Many states have introduced bills which […]