Consumer Genetic Testing: A Q&A with Carson Martinez
Carson Martinez is FPF’s Health Policy Fellow. She works on privacy challenges surrounding health data, particularly where it is not covered by HIPAA, as is the case with consumer-facing genetics companies, wearables, mobile health and wellness applications, and connected medical devices. Carson also leads the FPF Genetics Working Group and Health Working Group. How did […]
Smart Communities: A Conversation with Kelsey Finch
One of FPF Policy Counsel Kelsey Finch’s areas of focus is Smart Communities, a field which draws from many of FPF’s issue areas. From her Seattle office, she has the opportunity to do hands-on work with cities in the Pacific Northwest. Last year, she worked with city officials on Seattle’s first Open Data Risk Assessment, […]
Future of Privacy Forum is Turning 10!
On April 30, 2019 from 6:00 PM – 8:00 PM, we will host a 10th Anniversary Celebration in Washington D.C. — and you’re invited! We are delighted to announce that at the 10th Anniversary Celebration we will present the following awards: Helen Dixon Data Protection Commissioner, Ireland Distinguished Public Service J. Trevor Hughes President & […]
FamilyTreeDNA Agreement with FBI Creates Privacy Risks
Company’s Deal with Law Enforcement Surprises Consumers and Is Out-of-Step with Industry Norms and Best Practices By John Verdi and Carson Martinez Last week, FamilyTreeDNA announced an agreement with the FBI to allow agents to test DNA samples from crime scenes, develop genetic profiles, and identify familial matches. This agreement marks the first time a […]
IoT Devices Should Deal with Privacy Impacts for People with Disabilities
FOR IMMEDIATE RELEASE January 31, 2019 IoT Devices Should Deal with Privacy Impacts for People with Disabilities FPF Recommends Approaches to Incorporate Privacy, Accessibility by Design WASHINGTON, DC – The Future of Privacy Forum today released The Internet of Things (IoT) and People with Disabilities: Exploring the Benefits, Challenges, and Privacy Tensions. This paper explores […]
FPF Report: IoT Devices Should Deal with Privacy Impacts for People with Disabilities
FPF has released The Internet of Things (IoT) and People with Disabilities: Exploring the Benefits, Challenges, and Privacy Tensions. This paper explores the nuances of privacy considerations for people with disabilities using IoT services and provides recommendations to address privacy considerations, which can include transparency, individual control, respect for context, the need for focused collection […]
FPF's John Verdi on Privacy Papers for Policymakers
In recognition of the Future of Privacy Forum’s 10th anniversary, FPF policy experts are sharing their thoughts on FPF’s work over the past decade, the current privacy landscape, and their vision of the future of privacy. This week, FPF Vice President for Policy John Verdi discusses the Privacy Papers for Policymakers project, which began in […]
Privacy Papers 2018
The winners of the 2018 PPPM Award are: Shattering One-Way Mirrors. Data Subject Access Rights in Practice by Jef Ausloos, Postdoctoral Researcher, University of Amsterdam’s Institute for Information Law; and Pierre Dewitte, Researcher, KU Leuven Centre for IT & IP Law Abstract: The right of access occupies a central role in EU data protection law’s arsenal […]
FPF 10th Anniversary Sponsorship and Support
Sponsorship Packages Leadership Sponsor $25,000 • Recognition as Leadership Sponsor in promotions and media • Recognition as Leadership Sponsor in onsite materials and anniversary website • Recognition by FPF leadership from the podium • Includes five tickets to event Event Sponsor $10,000 • Recognition as Event Sponsor in onsite materials and anniversary website • Includes […]
CCPA, face to face with the GDPR: An in depth comparative analysis
The General Data Protection Regulation (Regulation (EU) 2016/679) (‘GDPR’) and the California Consumer Privacy Act of 2018 (‘CCPA’) both aim to guarantee strong protection for individuals regarding their personal data and apply to businesses that collect, use, or share consumer data, whether the information was obtained online or offline.