Healthcare technologies are rapidly evolving, producing new data types and innovative data uses. Data and technology can bring significant enhancements to the healthcare system, deepen patients’ and consumers’ engagement and understanding about their health, and be used as part of initiatives meant to improve health outcomes. It is critical to analyze how sensitive health and wellness data affect individual privacy and understand what it means for doctors, researchers, and companies to responsibly use such data. The FPF health team continues to build on its prior work on Consumer Wearables and Wellness Apps and Devices and Privacy Best Practices for Consumer Genetic Testing Services by exploring and addressing issues at the forefront and intersection of health, data, and privacy. Of main focus are the privacy challenges related to the collection, use, and sharing of both medical data and data that falls outside of the scope of HIPAA and FDA regulations. FPF brings together stakeholders to analyze how new technologies and data practices in the health ecosystem can impact individual privacy and promote the more effective and ethical use of data.
Deciphering “Legitimate Interests”: Report based on more than 40 cases from practice
FPF and Nymity collaborated to compile a Report on actual cases from practice and relevant guidance from the Article 29 Working Party and individual Data Protection Authorities (DPAs) concerning the use of “legitimate interests” as a lawful ground for processing under EU data protection law. Our aim is to help organizations better understand how to use and apply legitimate interests as a lawful basis for processing, while at the same time contributing to enhanced personal data protection for individuals.
FPF Welcomes New Senior Fellow
FPF is pleased to welcome Stanley W. Crosley as a senior fellow. Stanley has over 20 years of applied experience in law, data governance and data strategy across a broad sector of the economy, including from inside multinational corporations, academia, large law firm and boutique practices, not-for-profit advocacy organizations, and governmental agencies, and is the Co-Director of the Indiana University Center for Law, Ethics, and Applied Research in Health Information (CLEAR), is Counsel to the law firm of Drinker Biddle & Reath in Washington, DC, and Principal of Crosley Law Offices, LLC. Stan is a Senior Strategist at the Information Accountability Foundation and a Senior Fellow at the Future of Privacy Forum, where he leads health policy efforts.
Privacy Scholarship Research Reporter: Issue 3, December 2017 – 2017 Privacy Papers for Policymakers Award Winners
Notes from FPF On December 12, 2017, FPF announced the winners of our 8th Annual Privacy Papers for Policymakers (PPPM) Award. This Award recognizes leading privacy scholarship that is relevant to policymakers in the United States Congress, at U.S. federal agencies, and for data protection authorities abroad. In this special issue of the Scholarship Reporter, you […]
Privacy Papers 2017: Spotlight on the Winning Authors
Today, FPF announced the winners of the 8th Annual Privacy Papers for Policymakers (PPPM) Award. This Award recognizes leading privacy scholarship that is relevant to policymakers in the United States Congress, at U.S. federal agencies, and for data protection authorities abroad.
This Year's Six Must-Read Privacy Papers: The Future of Privacy Forum Announces Recipients of Annual Privacy Award
Washington, DC – Today, the Future of Privacy Forum announced the winners of the 8th Annual Privacy Papers for Policymakers Award. The PPPM Award recognizes leading privacy scholarship that is relevant to policymakers in the U.S. Congress, at U.S. federal agencies, and for data protection authorities abroad. The winners of the 2017 PPPM Award are:
FPF Welcomes New Team Members
The Future of Privacy Forum is delighted to welcome several new members to our team!
Upcoming Future of Privacy Forum Events
In the coming months, FPF will be hosting or co-hosting a number of events. We welcome your attendance and participation. Please contact us at [email protected] for further information.
In Memory of Elise Berkower
We learned yesterday of the passing of Elise Berkower, a dear friend and one of the unsung heroes in the world of digital privacy.
Consumer Genetic Testing: Beginning to Assess Privacy Practices
Genetic testing is becoming more widely available to consumers; such testing can be an exciting new opportunity to help individuals flesh out family histories, discover cultural connections, and learn about their personal backgrounds. The availability of low-cost genetic sequencing and analysis has led to numerous businesses offering a variety of services, including some that provide detailed health and wellness reports that explain how genetics can influence risks for certain diseases. The enthusiastic public response demonstrates that there is great demand for this knowledge.
FPF Welcomes New Senior Fellow
FPF is pleased to welcome Henry Claypool as a senior fellow. Henry is currently Policy Director at the Community Living Policy Center at the University of California, San Francisco. He is the former Director of the U.S. Department of Health and Human Services Office on Disability and a founding Principal Deputy Administrator of the Administration for Community Living.