Research often requires using sensitive data to answer important questions. The ethical collection and analysis of personal information can be challenging to do while still protecting the privacy of the implicated individuals, honoring informed consent, and complying with other legal obligations. The technology, policies, and ethical considerations for researchers are constantly shifting, sometimes making it difficult to keep up. That’s why FPF engages stakeholders across academia and industry to produce recommendations, best practices, and ethical review structures that promote responsible research. Our work is centered around streamlining, encouraging, and promoting responsible research that respects essential privacy and ethical considerations throughout the research lifecycle. FPF works with policymakers to develop legislative protections that support effective, responsible research with strong privacy safeguards, including hosting events that allow policymakers and regulators to engage directly with practitioners from academia, advocacy, and industry.
FPF also has an Ethics and Data in Research Working Group. This group receives late-breaking analysis of emerging legislation affecting research and data, meets to discuss the ethical and technological challenges of conducting research, and collaborates to create best practices to protect privacy, decrease risk, and increase data sharing for research, partnerships, and infrastructure. Learn more and join here.
Malaysia Charts Its Digital Course: A Guide to the New Frameworks for Data Protection and AI Ethics
The digital landscape in Malaysia is undergoing a significant transformation. With major amendments to its Personal Data Protection Act (PDPA) taking effect in June 2025, the country is decisively updating its data protection standards to meet the demands of the global digital economy. This modernization effort is complemented by a forward-looking approach to artificial intelligence […]
FPF Experts Take The Stage at the 2025 IAPP Global Privacy Summit
By FPF Communications Intern Celeste Valentino Earlier this month, FPF participated at the IAPP’s annual Global Privacy Summit (GPS) at the Convention Center in Washington, D.C. The Summit convened top privacy professionals for a week of expert workshops, engaging panel discussions, and exciting networking opportunities on issues ranging from understanding U.S. state and global privacy […]
FPF Launches Major Initiative to Study Economic and Policy Implications of AgeTech
FPF and University of Arizona Eller College of Management Awarded Grant by Alfred P. Sloan Foundation to Address Privacy Implications, and Data Uses of Technologies Aimed at Aging At Home The Future of Privacy Forum (FPF) — a global non-profit focused on data protection, AI and emerging technologies–has been awarded a grant from the Alfred […]
FPF Launches Effort to Advance Privacy-Enhancing Technologies, Convenes Experts, and Meets With White House
FPF’s Research Coordination Network will support developing and deploying Privacy-Enhancing Technologies (PETs) for socially beneficial data sharing and analytics. JULY 9, 2024 — Today, the Future of Privacy Forum (FPF) is launching the Privacy-Enhancing Technologies (PETs) Research Coordination Network (RCN) with a virtual convening of diverse experts alongside a high-level, in-person workshop with key stakeholders […]
AI Forward: FPF’s Annual DC Privacy Forum Explores Intersection of Privacy and AI
The Future of Privacy Forum (FPF) hosted its inaugural DC Privacy Forum: AI Forward on Wednesday, June 5th. Industry experts, policymakers, civil society, and academics explored the intersection of data, privacy, and AI. In Washington, DC’s southwest Waterfront at the InterContinental, participants joined in person for a full-day program consisting of keynote panels, AI talks, […]
FPF Awarded DOE and NSF Grants to Advance Privacy Enhancing Technologies & AI
The Future of Privacy Forum (FPF) has been awarded grants by the Department of Energy (DOE) and the National Science Foundation (NSF) to support FPF’s establishment of a Research Coordination Network (RCN) for Privacy-Preserving Data and Analytics. FPF’s work will support the development and deployment of Privacy Enhancing Technologies (PETs) for beneficial data sharing and […]
Overcoming Hurdles to Effective Data Sharing for Researchers
In 2021, challenges faced by academics in accessing corporate data sets for research and the issues that companies were experiencing to make privacy-respecting research data available broke into the news. With its long history of research data sharing, FPF saw an opportunity to bring together leaders from the corporate, research, and policy communities for a conversation […]
Organizations must lead with privacy and ethics when researching and implementing neurotechnology: FPF and IBM Live event and report release
A New FPF and IBM Report and Live Event Explores Questions About Transparency, Consent, Security, and Accuracy of Data The Future of Privacy Forum (FPF) and the IBM Policy Lab released recommendations for promoting privacy and mitigating risks associated with neurotechnology, specifically with brain-computer interface (BCI). The new report provides developers and policymakers with actionable […]
Data Sharing … By Any Other Name
There are many different uses of the term “data sharing” to describe a relationship between parties who share data from one organization to another organization for a new purpose. Some uses of the term data sharing are related to academic and scientific research purposes, and some are related to transfer of data for commercial or government purposes. ..it is imperative that we are more precise which forms of sharing we are referencing so that the interests of the parties are adequately considered, and the various risks and benefits are appropriately contextualized and managed.
Five Things Lawyers Need to Know About AI
Lawyers are trained to respond to risks that threaten the market position or operating capital of their clients. However, when it comes to AI, it can be difficult for lawyers to provide the best guidance without some basic technical knowledge. This article shares some key insights from our shared experiences to help lawyers feel more at ease responding to AI questions when they arise.