Research often requires using sensitive data to answer important questions. The ethical collection and analysis of personal information can be challenging to do while still protecting the privacy of the implicated individuals, honoring informed consent, and complying with other legal obligations. The technology, policies, and ethical considerations for researchers are constantly shifting, sometimes making it difficult to keep up. That’s why FPF engages stakeholders across academia and industry to produce recommendations, best practices, and ethical review structures that promote responsible research. Our work is centered around streamlining, encouraging, and promoting responsible research that respects essential privacy and ethical considerations throughout the research lifecycle. FPF works with policymakers to develop legislative protections that support effective, responsible research with strong privacy safeguards, including hosting events that allow policymakers and regulators to engage directly with practitioners from academia, advocacy, and industry.
FPF Year in Review 2025
Co-authored by FPF Communications Intern Celeste Valentino with contributions from FPF Global Communications Manager Joana Bala This year, FPF continued to broaden its footprint across priority areas of data governance, further expanding activities across a range of cross-sector topics, including AI, Youth, Conflict of Laws, AgeTech (seniors), and Cyber-Security. We have engaged extensively at the local […]
The “Neural Data” Goldilocks Problem: Defining “Neural Data” in U.S. State Privacy Laws
Co-authored by Chris Victory, FPF Intern As of halfway through 2025, four U.S. states have enacted laws regarding “neural data” or “neurotechnology data.” These laws, all of which amend existing state privacy laws, signify growing lawmaker interest in regulating what’s being considered a distinct, particularly sensitive kind of data: information about people’s thoughts, feelings, and […]
Out, Not Outed: Privacy for Sexual Health, Orientations, and Gender Identities
Co-authored by: Judy Wang (FPF Intern), Jeter Sison (FPF Intern), Jordan Wrigley (FPF Data and Policy Analyst, Health & Wellness) On National Coming Out Day, it’s important to recognize that Coming Out is a right of passage for many LGBTQ+ individuals and a decision that they should be empowered to make for themselves. Protections for […]
FPF in 2023: A Year in Review
As 2023 comes to an end, we want to reflect on a year that saw the Future of Privacy Forum (FPF) continue to expand its presence globally and domestically while organizing engaging events, publishing thought-provoking analysis, providing the latest expert updates, and more. FPF continues to convene industry experts, academics, consumer advocates, and other experts […]
Risk Framework for Body-Related Data in Immersive Technologies
Today, the Future of Privacy Forum (FPF) released its Risk Framework for Body-Related Data in Immersive Technologies for organizations to structure the collection, use, and onward transfer of body-related data. Organizations building immersive technologies like extended reality and virtual worlds often rely on large amounts of data about individuals’ bodies and behaviors. While body-related data […]
FPF Weighs In on the Responsible Use and Adoption of Artificial Intelligence Technologies in New York City Classrooms
Last week, Future of Privacy Forum provided testimony at a joint public oversight hearing before the New York City Council Committees on Technology and Education on “The Role of Artificial Intelligence, Emerging Technology, and Computer Instruction in New York City Public Schools.” Specifically, FPF urged the Council to consider the following recommendations for the responsible adoption […]
Data Sharing for Research: A Compendium of Case Studies, Analysis, and Recommendations
Today, the Future of Privacy Forum (FPF) published a report on corporate-academic partnerships that provides practical recommendations for companies and researchers who want to share data for research. The Report, Data Sharing for Research: A Compendium of Case Studies, Analysis, and Recommendations, demonstrates how, for many organizations, data-sharing partnerships are transitioning from being considered an […]
FPF Files Comments with the U.S. Department of Health and Human Services (HHS) Office for Civil Rights
On June 15, the Future of Privacy Forum (FPF) filed comments with the U.S. Department of Health and Human Services (HHS) Office for Civil Rights (OCR) regarding the Notice of Proposed Rulemaking (NPRM) on extending additional protections to reproductive health care data under the Health Insurance Portability and Accountability Act (HIPAA). One year ago last […]
We’re On to Oregon: Sixth State Privacy Law of 2023 Creates New Consumer Rights and Protections
On June 22nd, lawmakers in Salem passed SB 619, the Oregon Consumer Privacy Act (“OCPA”). If enacted by Governor Kotek, Oregon will become the eleventh U.S. state (and sixth in 2023) to adopt broad-based data privacy legislation governing the collection, use, and transfer of consumer data. The bulk of OCPA’s requirements will take effect on […]
Knowledge is Power: The Future of Privacy Forum launches FPF Training Program
“An investment in knowledge always pays the best interest”–Ben Franklin Let’s make 2023 the year we invest in ourselves, our teams, and the knowledge needed to best navigate this dynamic world of privacy and data protection. I am fortunate to know many of you who will read this blog post, but for those who I […]