California’s SB 980 Would Codify Strong Protections for Genetic Data
Author: John Verdi (Vice President of Policy) This week, SB 980 (the “Genetic Information Privacy Act”) passed the California State Assembly and State Senate, with near unanimous support (54-10 and 39-0). If signed by the Governor before the Sept. 30 deadline, the law would become the first comprehensive genetic privacy law in the United States, […]
California SB 980 Would Codify Many of FPF’s Best Practices for Consumer Genetic Testing Services, but Key Differences Remain
Authors: John Verdi (Vice President of Policy) and Katelyn Ringrose (Christopher Wolf Diversity Law Fellow) In July 2018, the Future of Privacy Forum released Privacy Best Practices for Consumer Genetic Testing Services. FPF developed the Best Practices following consultation with technical experts, regulators, leading consumer genetic and personal genomic testing companies, and civil society. The […]
CAV Merged Presentation Slides 6-25-20 copy-compressed
CAV Merged Presentation Slides 6-25-20 copy-compressed
Commoditization of Data is the Problem, Not the Solution – Why Placing a Price Tag on Personal Information May Harm Rather Than Protect Consumer Privacy
This guest post is by Lokke Moerel, a Professor of Global ICT Law at Tilburg University and Senior of Counsel at Morrison & Foerster in Berlin, and Christine Lyon, partner at Morrison & Foerster in Palo Alto, California. To learn more about FPF in Europe, please visit https://fpf.org/eu. By Lokke Moerel and Christine Lyon[1] Friend and […]
Remarks on Diversity and Inclusion by Michael McCullough
Last Thursday, June 18, 2020, Macy’s Chief Privacy Officer and FPF Advisory Board member Michael McCullough spoke about diversity and inclusion at WireWheel’s Spokes 2020 conference. The Question: I’ve spoken to each of you about your views on diversity and equality, and about how that’s reflected in our privacy and data protection community. This has […]
