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Click here to view the Call for Nominations for the 2021 FPF Award for Research Data Stewardship. Click here to watch a recording of the 2020 FPF Award for Research Data Stewardship virtual awards event. University of California Irvine (UCI) Professor of Cognitive Science Mark Steyvers and Lumos Labs – the parent company behind Lumosity, […]

By Brenda Leong and Dr. Sara Jordan Machine learning-based technologies are playing a substantial role in the response to the COVID-19 pandemic. Experts are using machine learning to study the virus, test potential treatments, diagnose individuals, analyze the public health impacts, and more. Below, we describe some of the leading efforts and identify data protection […]

Benefitting from a mature and largely harmonized data protection legal framework, the European Union and its Member States are taking policymaking steps towards a pan-European approach to enlisting data and technology against the spread of COVID-19 and to support the gradual restarting of the economy. Here is an overview of key recent events essential to […]

As the COVID-19 virus spreads, governments, researchers, and healthcare institutions are seeking to obtain and deploy consumer data to track the spread of the virus, deliver emergency supplies, target travel restrictions and quarantines, and develop vaccines and cures. But can data collected from phones, credit cards, and other sources be used in this emergency without […]

In this series, Privacy and Pandemics, the Future of Privacy Forum explores the challenges posed by the COVID-19 crisis to existing ethical, privacy, and data protection frameworks, and will seek to provide information and guidance to companies and researchers interested in responsible data sharing to support public health response. Future posts will examine pandemic-tracking mobile […]

Today, the Future of Privacy Forum (FPF) and AASA, The School Superintendents Association, released a new white paper that offers guidance to help K-12 and higher education administrators and educators protect student privacy during the COVID-19 pandemic.

Florida lawmakers recently introduced HB 1189/SB 1564 – a bill that would prohibit life and long-term care insurers from basing coverage and rates or denying coverage based on individuals’ genetic information. Washington State lawmakers are considering a bill, HB 2485, that would prohibit life insurance companies and others from obtaining individuals’ genetic information from direct-to-consumer […]

By: Stacey Gray and Gabriela Zanfir-Fortuna * We wrote last week that Washington State seems poised to become the second US state to pass a major comprehensive privacy bill. The proposed Washington Privacy Act (WPA) would be mostly aligned with the EU’s GDPR, the global gold standard for data protection (although there are still some […]

By Gabriela Zanfir-Fortuna and Chelsey Colbert The European Data Protection Board recently published its draft Guidelines 1/2020 on processing personal data in the context of connected vehicles and mobility related applications, which are open for feedback until March 20. The EDPB writes that the main challenge for complying with European data protection and privacy laws […]