Healthcare technologies are rapidly evolving, producing new data types and innovative data uses. Data and technology can bring significant enhancements to the healthcare system, deepen patients’ and consumers’ engagement and understanding about their health, and be used as part of initiatives meant to improve health outcomes. It is critical to analyze how sensitive health and wellness data affect individual privacy and understand what it means for doctors, researchers, and companies to responsibly use such data. The FPF health team continues to build on its prior work on Consumer Wearables and Wellness Apps and Devices and Privacy Best Practices for Consumer Genetic Testing Services by exploring and addressing issues at the forefront and intersection of health, data, and privacy. Of main focus are the privacy challenges related to the collection, use, and sharing of both medical data and data that falls outside of the scope of HIPAA and FDA regulations. FPF brings together stakeholders to analyze how new technologies and data practices in the health ecosystem can impact individual privacy and promote the more effective and ethical use of data.
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Twelve Privacy Investments for Your Company for a Stronger 2025
FPF has put together a list of Twelve Privacy Investments for Your Company for a Stronger 2025 that reflects on new perspectives on the work that privacy teams do at their organizations. We hope there is something here that’s useful where you work, and we’d love to hear other ideas and feedback. Privacy Investments for Your […]
FPF’s Year in Review 2024
With contributions from Judy Wang, Communications Intern 2024 was a landmark year for the Future of Privacy Forum, as we continued to grow our privacy leadership through research and analysis, domestic and global meetings, expert testimony, and more – all while commemorating our 15th anniversary. Expanding our AI Footprint While 2023 was the year of […]
AI Forward: FPF’s Annual DC Privacy Forum Explores Intersection of Privacy and AI
The Future of Privacy Forum (FPF) hosted its inaugural DC Privacy Forum: AI Forward on Wednesday, June 5th. Industry experts, policymakers, civil society, and academics explored the intersection of data, privacy, and AI. In Washington, DC’s southwest Waterfront at the InterContinental, participants joined in person for a full-day program consisting of keynote panels, AI talks, […]
Regu(AI)ting Health: Lessons for Navigating the Complex Code of AI and Healthcare Regulations
Authors: Stephanie Wong, Amber Ezzell, & Felicity Slater As an increasing number of organizations utilize artificial intelligence (“AI”) in their patient-facing services, health organizations are seizing the opportunity to take advantage of the new wave of AI-powered tools. Policymakers, from United States (“U.S.”) government agencies to the White House, have taken heed of this trend, […]
Regu(AI)ting Health: Lessons for Navigating the Complex Code of AI and Healthcare Regulations
Authors: Stephanie Wong, Amber Ezzell, & Felicity Slater As an increasing number of organizations utilize artificial intelligence (“AI”) in their patient-facing services, health organizations are seizing the opportunity to take advantage of the new wave of AI-powered tools. Policymakers, from United States (“U.S.”) government agencies to the White House, have taken heed of this trend, […]
BCIs & Data Protection in Healthcare: Data Flows, Risks, and Regulations
This post is the second in a four-part series on Brain-Computer Interfaces (BCIs), providing an overview of the technology, use cases, privacy risks, and proposed recommendations for promoting privacy and mitigating risks associated with BCIs. Click here for FPF and IBM’s full report: Privacy and the Connected Mind. In case you missed it, read the […]
Brain-Computer Interfaces: Privacy and Ethical Considerations for the Connected Mind
BCIs are computer-based systems that directly record, process, analyze, or modulate human brain activity in the form of neurodata that is then translated into an output command from human to machine. Neurodata is data generated by the nervous system, composed of the electrical activities between neurons or proxies of this activity. When neurodata is linked, or reasonably linkable, to an individual, it is personal neurodata.
Artificial Intelligence and the COVID-19 Pandemic
By Brenda Leong and Dr. Sara Jordan Machine learning-based technologies are playing a substantial role in the response to the COVID-19 pandemic. Experts are using machine learning to study the virus, test potential treatments, diagnose individuals, analyze the public health impacts, and more. Below, we describe some of the leading efforts and identify data protection […]