Healthcare technologies are rapidly evolving, producing new data types and innovative data uses. Data and technology can bring significant enhancements to the healthcare system, deepen patients’ and consumers’ engagement and understanding about their health, and be used as part of initiatives meant to improve health outcomes. It is critical to analyze how sensitive health and wellness data affect individual privacy and understand what it means for doctors, researchers, and companies to responsibly use such data. The FPF health team continues to build on its prior work on Consumer Wearables and Wellness Apps and Devices and Privacy Best Practices for Consumer Genetic Testing Services by exploring and addressing issues at the forefront and intersection of health, data, and privacy. Of main focus are the privacy challenges related to the collection, use, and sharing of both medical data and data that falls outside of the scope of HIPAA and FDA regulations. FPF brings together stakeholders to analyze how new technologies and data practices in the health ecosystem can impact individual privacy and promote the more effective and ethical use of data.
Q&A With FPF Vice President for U.S. Policy, Matthew Reisman
In a new Q&A, our new Vice President for U.S. Policy, Matthew Reisman, takes a deeper look at the privacy landscape, particularly his interests in the space, what to look forward to in the U.S. and AI sector, and what is key for stakeholders to pay attention to. What brought you into the privacy and […]
FPF Year in Review 2025
Co-authored by FPF Communications Intern Celeste Valentino with contributions from FPF Global Communications Manager Joana Bala This year, FPF continued to broaden its footprint across priority areas of data governance, further expanding activities across a range of cross-sector topics, including AI, Youth, Conflict of Laws, AgeTech (seniors), and Cyber-Security. We have engaged extensively at the local […]
Tech to Support Older Adults and Caregivers: Five Privacy Questions for Age Tech
Introduction As the U.S. population ages, technologies that can help support older adults are becoming increasingly important. These tools, often called “AgeTech”, exist at the intersection of health data, consumer technology, caregiving relationships, and increasingly, artificial intelligence, and are drawing significant investment. Hundreds of well funded start-ups have launched. Many are of major interest to […]
FPF Experts Take The Stage at the 2025 IAPP Global Privacy Summit
By FPF Communications Intern Celeste Valentino Earlier this month, FPF participated at the IAPP’s annual Global Privacy Summit (GPS) at the Convention Center in Washington, D.C. The Summit convened top privacy professionals for a week of expert workshops, engaging panel discussions, and exciting networking opportunities on issues ranging from understanding U.S. state and global privacy […]
Twelve Privacy Investments for Your Company for a Stronger 2025
FPF has put together a list of Twelve Privacy Investments for Your Company for a Stronger 2025 that reflects on new perspectives on the work that privacy teams do at their organizations. We hope there is something here that’s useful where you work, and we’d love to hear other ideas and feedback. Privacy Investments for Your […]
FPF’s Year in Review 2024
With contributions from Judy Wang, Communications Intern 2024 was a landmark year for the Future of Privacy Forum, as we continued to grow our privacy leadership through research and analysis, domestic and global meetings, expert testimony, and more – all while commemorating our 15th anniversary. Expanding our AI Footprint While 2023 was the year of […]
Out, Not Outed: Privacy for Sexual Health, Orientations, and Gender Identities
Co-authored by: Judy Wang (FPF Intern), Jeter Sison (FPF Intern), Jordan Wrigley (FPF Data and Policy Analyst, Health & Wellness) On National Coming Out Day, it’s important to recognize that Coming Out is a right of passage for many LGBTQ+ individuals and a decision that they should be empowered to make for themselves. Protections for […]
AI Forward: FPF’s Annual DC Privacy Forum Explores Intersection of Privacy and AI
The Future of Privacy Forum (FPF) hosted its inaugural DC Privacy Forum: AI Forward on Wednesday, June 5th. Industry experts, policymakers, civil society, and academics explored the intersection of data, privacy, and AI. In Washington, DC’s southwest Waterfront at the InterContinental, participants joined in person for a full-day program consisting of keynote panels, AI talks, […]
Top Six Major Privacy Enforcement Trends: A U.S. Legislation Retrospective
Enforcement activity intensifies as U.S. consumer privacy laws continue to evolve and come into effect. In 2023 and 2024 alone, there have been dozens of enforcement actions at the U.S. federal and state levels, some of which reveal or touch on significant throughlines for privacy policy issues, such as what constitutes a privacy violation or […]
Reproductive Rights Have Been Privacy Rights For 50 Years
About fifty years ago, the U.S. Supreme Court decided a case that would provide the basis for federal privacy protections for reproductive health decisions. The importance of protecting reproductive information and choice, particularly where abortion was concerned, was the basis for Roe v. Wade (1973) and Planned Parenthood v. Casey (1992), which provided women and […]