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In 2023, four states enacted new genetic privacy laws regulating direct-to-consumer genetic testing companies. This blog post provides details on what these new laws cover and how they compare to FPF’s widely-adopted Best Practices for Consumer Genetic Testing Services.  Genetic privacy has been under increasing scrutiny at the state and federal levels, and regulators are […]

Today, almost everything we do online involves companies collecting personal information about us. Personal data is collected and used for various reasons – like when you use social media, shop online, redeem digital coupons at the store, or browse the internet.  Sometimes, information is collected about you by one company and then shared or sold […]

As organizations develop more immersive technologies, and rely on the collection, use, and transferring of body-related data, they need to ensure their data practices not only maintain legal compliance, but also more fulsomely protect people’s privacy. To guide organizations as they develop their body-related data practices, the Future of Privacy Forum created the Risk Framework […]

Organizations are increasingly incorporating immersive technologies like extended reality (XR) and virtual worlds into their products and services, blurring the boundaries between the physical and digital worlds. Immersive technologies hold the potential to transform the way people learn, work, play, travel, and take care of their health, but may create new privacy risks as well. […]

In the summer of 2021, FPF announced our participation in a collaborative project with researchers from the Pennsylvania State University and the University of Michigan to develop and build a searchable database of privacy policies and other privacy-related documents, with the support of the National Science Foundation. This project, PrivaSeer, has since become an evolving, […]