Healthcare technologies are rapidly evolving, producing new data types and innovative data uses. Data and technology can bring significant enhancements to the healthcare system, deepen patients’ and consumers’ engagement and understanding about their health, and be used as part of initiatives meant to improve health outcomes. It is critical to analyze how sensitive health and wellness data affect individual privacy and understand what it means for doctors, researchers, and companies to responsibly use such data. The FPF health team continues to build on its prior work on Consumer Wearables and Wellness Apps and Devices and Privacy Best Practices for Consumer Genetic Testing Services by exploring and addressing issues at the forefront and intersection of health, data, and privacy. Of main focus are the privacy challenges related to the collection, use, and sharing of both medical data and data that falls outside of the scope of HIPAA and FDA regulations. FPF brings together stakeholders to analyze how new technologies and data practices in the health ecosystem can impact individual privacy and promote the more effective and ethical use of data.
Africa’s Data Protection Reforms: A Continental Perspective on the Drivers of Change in Legal Frameworks
1. Introduction Within an evolving digital landscape, several African jurisdictions have proposed a variety of reforms to existing and novel legal frameworks that regulate the processing of personal data, and the development and deployment of new technologies. Across the continent, there is a growing consensus among legislators on the need to create a regulatory environment […]
Innovation and Data Privacy Are Not Natural Enemies: Insights from Korea’s Experience
The following is a guest post to the FPF blog authored by Dr. Haksoo Ko, Professor at Seoul National University School of Law, FPF Senior Fellow and former Chairperson of South Korea’s Personal Information Protection Commission. The guest post reflects the opinion of the author only and does not necessarily reflect the position or views […]
FPF Holiday Gift Guide for AI-Enabled, Privacy-Forward AgeTech
On Cyber Monday, giving supportive technology to an older loved one or caregiver is a great option. Finding the perfect holiday gift for an older adult who values their independence can be a challenge. This year, it might be worth exploring the exciting world of AI-enabled AgeTech. It’s not only gadgets; it’s also about giving […]
“Personality vs. Personalization” in AI Systems: Intersection with Evolving U.S. Law (Part 3)
This post is the third in a series on personality versus personality in AI systems. Read Part 1 (exploring concepts) and Part 2 (concrete uses and risks). Conversational AI technologies are hyper-personalizing. Across sectors, companies are focused on offering personalized experiences that are tailored to users’ preferences, behaviors, and virtual and physical environments. These […]
Chile’s New Data Protection Law: Context, Overview, and Key Takeaways
On August 26, 2024, the Chilean Congress approved Law 21.719, on the Protection of Personal Data (“LPPD”) after eight years of legislative debate. The legislation was published on December 13, 2024, and will become fully effective twenty-four months after that date (in December 2026). The LPPD was introduced in the Senate in 2017 to replace […]
The DNA of Genetic Privacy Legislation: Montana, Tennessee, Texas, and Virginia Enter 2024 with New Genetic Privacy Laws Incorporating FPF’s Best Practices
In 2023, four states enacted new genetic privacy laws regulating direct-to-consumer genetic testing companies. This blog post provides details on what these new laws cover and how they compare to FPF’s widely-adopted Best Practices for Consumer Genetic Testing Services. Genetic privacy has been under increasing scrutiny at the state and federal levels, and regulators are […]
FPF in 2023: A Year in Review
As 2023 comes to an end, we want to reflect on a year that saw the Future of Privacy Forum (FPF) continue to expand its presence globally and domestically while organizing engaging events, publishing thought-provoking analysis, providing the latest expert updates, and more. FPF continues to convene industry experts, academics, consumer advocates, and other experts […]
Optum & The Mayo Clinic Win the 2022 Award for Research Data Stewardship
Author: Randy Cantz, U.S. Policy Intern, Ethics and Data in Research and former Communications Intern at FPF On Wednesday, May 10, 2023, the Future of Privacy Forum (FPF) honored representatives from Optum and the Mayo Clinic for their outstanding corporate-academic research data-sharing partnership at the 3rd annual Awards for Research Data Stewardship. The awards honor […]
FPF in 2022: A Year in Review
As 2022 comes to an end, we wanted to reflect on a year that saw the Future of Privacy Forum (FPF) expand its presence both domestically and around the globe, while producing engaging events, thought-provoking analysis, and insightful publications. Global Expansion In 2022, FPF closely followed and advised upon significant developments in Asia, the European […]
Record Set: Assessing Points of Emphasis from Public Input on the FTC’s Privacy Rulemaking
More than 1,200 law firms, advocacy organizations, trade associations, companies, researchers, and others responded to the Federal Trade Commission’s Advance Notice of Proposed Rulemaking (ANPR) on “Commercial Surveillance and Data Security.” Significantly, the ANPR initiates a process that may result in comprehensive regulation of data privacy and security in the United States, and also marks […]